So my pancreas went on a permanent coffee break, my blood sugar spiked, and my erections filed a formal grievance with HR. For those of you in the “T2D + ED” club, is impotence actually reversible here, or are we just learning to MacGyver the plumbing with pumps, pills, and pep talks?
I’m trying to separate internet folklore from reality. If you’ve been there, what actually moved the needle (pun absolutely intended)? Curious about the difference between “fixable” and “manage-it-forever” when diabetes is the root cause.
Specific things I’d love real-world intel on:
- Glycemic control: If you dropped A1c (how low, how long), did function rebound? Are we talking weeks, months, or “see you next fiscal year” timelines?
- Wiring vs. plumbing: If the issue is neuropathy versus microvascular damage, what has actually bounced back for you? Any tests (NPT, penile Doppler, biothesiometry) that predicted who improves?
- Meds that helped or hurt: Experiences with PDE5 inhibitors in diabetics (higher doses needed, different response)? Did GLP-1s or SGLT2s accidentally improve things via weight loss and cardio benefits, or did dehydration/other side effects make things worse?
- Lifestyle levers: Did resistance training, HIIT, sleep apnea treatment, or going on the “two-drink max” plan make a noticeable difference? Placebo or legit?
- Pelvic floor: Anyone try pelvic floor PT specifically for diabetic ED? Worth it or just pricey squats?
- Testosterone: For those with borderline-low T (very common in T2D), did TRT actually change game day, or just the pre-game hype? Combo with PDE5s better?
- Shockwave therapy: Miracle or marketing? Especially in diabetics, any durable gains from Li-ESWT? Protocols that weren’t pure wallet cardio?
- Supplements: L-citrulline, Pycnogenol, ginseng, etc.-anything that wasn’t just expensive salad?
- Signs of true recovery: Return of morning wood, better nocturnal tumescence, less “lag” between arousal and response? Anyone notice same-day performance correlating with CGM time-in-range, or is that wishful biohacking?
- Specialists: Did coordinating endo + urologist + cardiology actually uncover hidden issues (e.g., ED as early warning for vascular disease)? Worth the circus?
- When is an implant the “sane” option: If neuropathy/vascular damage is far along, did anyone go straight to an implant and think, “Should’ve done this sooner,” especially with diabetes-related infection risk considered?
Bonus points if you can share your before/after snapshot: age range, A1c before/after, meds, timeline, and which single change delivered the biggest “aha.” I’ll be over here telling my circulatory system I’d like to speak to its manager.